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Member
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Join Date: Sep 2012
Location: Columbus
Posts: 304
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Member
Join Date: Sep 2012
Location: Columbus
Posts: 304
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Update
I went to my neuro optometrist on Tuesday and got some rather upsetting feedback from him. I basically told him that I thought his test on me Triggered my setback, in particular the fact that he shines a bright light in my eyes. At the time, I remember it was very shocking And uncomfortable for me. If I known he was going to do it, I would've told him no. Anyway, he felt pretty terrible about it, I could tell, and he basically said that I should stop doing vision therapy, since it was only increasing my pain, that i was the worst case of photo sensitivity he'd ever encounter, and that the only thing he had to offer me was light therapy, where I would be looking at a violet light two or three times a week for 20 minutes each session. He said it could help, but not necessarily that it would. He said other than that, all I could do was rest and wait For one or two years and hopefully I would be better by then.
I told him I would talk to my husband about the light therapy and get back to him. I decided to seek a second opinion and see and neuro ophthalmologist. I kind of skipped that step and went straight to the optometrist. I don't even know if it's worth my time, effort, and money, I just want make sure there's nothing else Contributing to my pain and that there's nothing else I can do to get better.
I have been getting better. The first four days, it just felt like the pain would never stop. After that I started slowly improving and now it seems like the pace of my recovery has picked up a bit. I'm not back to the level of pain I felt prior to the setback, but I feel I will get back to that. What I don't know is if I'm going to get any better than that. It scares me. What job could I possibly do that wouldn't involve a computer or being in fluorescent lighting? I know it's too soon to worry about that, but I do think about it sometimes and come up blank.
On the upside, I got my new super dark sunglasses with prism lenses. They are a huge improvement over my old glasses. I should've done this four months ago. I also kind of fault my optometrist for that.
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.
*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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