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Member
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Join Date: Apr 2012
Location: Indiana
Posts: 430
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Member
Join Date: Apr 2012
Location: Indiana
Posts: 430
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What else is MS going to take?!?!
Now its taking more of my walking. Im pretty much walker full time except for stores which is the motor scooters, and now its my speech. I sound like Im drunk or severly mentally impaired. My handwriting is already shot. I regressed to writing like a 1st or 2nd grader. My DH, oldest DD and youngest DD and I have been talking the past few days and I just really feel like Ive failed my family. Ive been a real let down.Ive even let down the grand babies. There's no way I can play with them now. MS has even taken that from me, and THEM!! Anything else dag gum it, cuz Im losing my mind here!! My youngest DD is begging me to call my neuro, but for what?? All he'll want is another MRI, and for what?? Oh, you have active lesions, or ,oh, you have no active lesions. He's always pushing MRIs, Im sick of them. 21yrs of MRIs and I can lite up the city of Chicago at Christmas time, no problem! Oh my, Ive become the person I said Id never become, the complainer. Oh please forgive me. Im just having trouble digesting all this crap lately. It seems to be hitting me all at once. Lately, I think maybe Ive made that mad leap from RRMS to SPMS. Scares me a bit.
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Dx RRMS April 1992
Yearly flares from 92 to 11
MS induced seizures 2002
Flare Oct 2011
Flare Dec 2011
Left disabled after 2 previous flares
Betaseron '02, Copaxone '12, Tecfidera '13
(allergic reaction to all)
No longer taking any MS therapy meds
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