Hello,

does any one feel that mestinon is really 'used up' during activity? Normally if I do something (like walking a flight of stairs) that makes my muscles weakness worse I recover in about 10 minutes to the level I had before starting the activity. However if I am active for a more prolonged time I don't recover until my next dose.

Another question: does you muscle weakness always get to the point you are not able to use your muscles at all? I get that sometimes in some muscles (althought I'm never 'totaly paralyzed' or something, just not able to lift my arms to put the next peace of clothing on the washing line for instance). But I have always been able to walk. Sometimes only with my knees overstretched an kind a duck like due to weak pelvic girdle muscles an weak thigh muscles. But I hardly ever get to the point were I fall. Only sometimes, mainly in the past I did. For instance my legs giving way after getting of my bike, or my legs giving way when trying to get into a bus after walking to the bus stop. I think I may have learned how to do that without falling, because I move in strange ways sometimes?