Thread: RSD spread???
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Old 06-23-2013, 05:25 PM
Brambledog Brambledog is offline
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Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
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Hi Rachael, sorry you're dealing with so much...

Mine spread from L knee to L foot, then L thigh and rest of the leg, then jumped across to my R foot, then my L arm most recently. There's no rhyme or reason with CRPS.

Vitamin C is meant to help prevent spread, I know there is evidence that it reduces spread after surgery etc, and some take it to prevent spread generally. I don't know if it works like that, but it's only Vit C so might be worth a go.

I personally found Gabapentin did very little to help mine (docs love it because it is cheap to prescribe), I'm back on a low dose of Lyrica again now (more expensive for them) and coping better, but my arm is getting worse with the symptoms. Physio is really important, and that you get the meds to control your pain and let you do that. Hope you have a good GP who is supportive and ready to partner you through this

Take care and all the best.

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
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