Originally Posted by xanadu00

Your sensitivity to light will gradually decrease. For months, I had to wear double-layer sunglasses everywhere...including indoors on cloudy days and at night. I had large, extra-dark sunglasses that fit over my regular glasses and clip-on sunglasses. I had to put duct tape over every exposed corner of the large sunglasses so that no light was coming through anywhere, and I always wore a hat with the brim pulled down over my glasses.

During that time, I could not even look at a computer for more than, say, 30 seconds at a time. That was with the screen dimmed and all of the aforementioned eyewear. I had to "listen" to posts here, as well as emails and such, via text-to-voice software.

Over a period of many months (which has included a couple of severe setbacks), I have improved to the point where I can almost always get by with a light FL-41 prescription tint and a hat. I do still need extra eye protection in fluorescent lighting, but I don't react nearly as strongly to it now as I used to.

Even if your photosensitivity is the worst case your opto has ever seen, I doubt that it is worse than mine was during my worst period. (I can't even imagine how photophobia could be more severe than what I had.) I do not know whether your photophobia will ever resolve completely, but I am very confident that it will improve quite a bit. It takes A LOT of time, though, and progress is not always steady. Please try to be as patient as you can with your recovery. I know first-hand how difficult this can be. Still, even with my remaining photophobia, my life is immeasurably better now than it was when my photophobia was at its worst.