Quote:
Originally Posted by fmichael
I participated this afternoon in conference call with representative of various disability organizations..................
Mike
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Mike, just wanted to thank you for ALL you are doing for those of us who suffer from a disabling disease such as CRPS, especially when it comes to tolerating air transportation. I've flown a number of times after being diagnosed with CRPS with minimal lasting physical effects. However, just returned from vacation - only 3-hr. flight. Upon descent, this deep, slicing, horrific pain started in my abdomen and by the time we landed, engulfed my total body in excruciating pain. I could barely get out of my seat & bit my lip to keep from screaming. I cried all the way home praying it was temporary, but it progressed.
Immediately, scheduled an appt. with my pain specialist MD for a SGB to the rt arm the next day. Received that and will start with another block to the rt leg & foot, followed every other week by further blocks until some type of pain control can be achieved. I Praise the Lord these blocks do work for me. However, my neck and head discomfort are totally new!
I'm supposed to be flying again in Oct. and am scared to death, but with your influence with the TSA Dept., maybe I could at least look forward to a very light pat-down. Thanks for your continued support and for providing TSA with some very vital health info. about a disease that's not recognized or acknowledged.
Keep up the good work & God Bless You!
Sherry