I brought this up before and got fairly negative response. Since then I was sent to Strong memorial in Rochester NY. to consult with a specialist. I told him I already decided against the biopsy but he was pretty convincing and now I have to decide.
He said he was the only nerve specialist in the region and he was very confident. He wants to take out almost an inch of nerve off the side of my foot.(said it was an insignificant spot) he said looking at this under a microscope is the only way to get a true diagnosis that could lead to treatment. He even went as far as to offer me a repair of the nerve he would remove. By connecting the nerve ends with some kind of shunt. he told me he does not usually offer this, and it works 60% of the time. He is a surgeon who does over 100 nerve repairs and transplants a year. So I sit here thinking, without intervention where will I be in 5 years. The thought of sacrificing a small section on nerve to possibly stop the progression of this is appealing. I asked him if he had any suspicions of what I may have and he said "Yes, but I'm not going to tell you". I feel I made a bad decision to have the nerve block last year, but I kind of feel that after all the doctors who have guessed, this is more specifically targeting PN. (any experience with this)