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Junior Member
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Join Date: Jun 2013
Location: New Jersey
Posts: 6
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Junior Member
Join Date: Jun 2013
Location: New Jersey
Posts: 6
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Updates and B12 Questions!
Thanks everyone for all your advice!
I went to my neurologist again yesterday. My anti-sulfatide antibody count was 1700. Normal is 1500 and below, so he seemed to think it wasn't something to be super concerned about, since my symptoms are sporadic and I'm "barely positive." I feel like he thinks a lot of my symptoms are anxiety related, which is possible I guess, considering I'm an anxious person, even without the PN thrown in the mix. Anyway, he ordered the test again to see what it shows this time, and I should probably have those results in a week or so. I also asked him to run some of the other B Vitamin tests, as well as magnesium, and Vitamin D, since it wasn't done last time. He actually said he doesn't suspect it's small fiber neuropathy, because my symptoms don't sound like that, and the anti-sulfatide test isn't a marker for small fiber, but for auto-immune sensory neuropathy.
I DID ask him what my B12 level was though, and he said it was 679. He considered this to be "good." The test apparently goes all the way down to 200 for the low normal range, which surprised me because that seemed really, really low. I'm waiting to find out what the Vitamin D level is before I start supplementing with that, but I did want to get your opinions on the B12 though. Is 679 too low, or should I be taking supplements? If so, how much of the methyl B12 should I be taking? I know there's no upper limit, but just wondering. Thanks again for your replies!
Deanna
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