Quote:
Originally Posted by KathyUK
I've done it again but this time I was genuinely pacing and now I can't get up at all. Two hours in town with 3 good breaks. Just wanted to be normal. Went for coffee with my sister and her daughter (the ones that were fighting and are now back on track) but a couple of my sister's friends came and laughed at me for walking slow (don't think they meant to upset me) and one of them let go of a heavy door which slammed on my hip. I was feeling really faint all the time we were out and nearly fainted a couple of times. They didn't notice but my niece did and helped. Rang Baz and he took me home and I've been so sore since. On top of my legs and back flare pain my ribs also ache so much it hurts to breathe and I vomited from pain through the night. That's with the supposed flare tablets that I now have to take regularly just to get up on a good day.
I've been reflecting on how medically the move up north has been really bad for me. If I was still under my old GP and pain clinic there's no way they'd have left me like this. My new GP is nice and thoughtful but I've long since given up getting a medicine overhaul from him as he won't dare do it without the pain clinic backing and they're saying if I'm tolerant to one med then I'm tolerant to all and only counselling will help. I need the meds sorting because this pain clinic are forcing me into a wheelchair which I wouldn't need if I was managed better. I am so angry and tired. I hated living in Yorkshire but all I can think of is how much better I was supported down there by the medical profession.
Sorry for offloading. Just missing living.
|
You have truly had a rough time of things. It is very sad to hear this story, and all the stories that have the same or very similar experiences. Each and every one of us seems to have come up against this sort of abuse, and in the vulnerable states that we are in, are unable to pop right back and lead with a perfect game plan or reply - it is hard enough, as you say, to even 'try' normal! Is there any way that your old pain team and doctor can forward all the relevant information to the new one, and could not the 'backing' of the old plan reassure your present doctor? One would think that if it was good enough to cover the other guys *****, it should cover his too. Perhaps it is possible for you to have the other team write an introduction and outline the protocol that is in place and working (as well as can be expected) and send this to your new doc? I hate, absolutely, that every time we seem to come forward a bit with our ideas and attitudes around and about pain and medication, some big news splash seems to snatch all the hard won ground straight out from under, and, again, all the doc's except a small and very dedicated handful hang in there and truly make life worth living for another day. Rest, redirect your energies the best way you can to help yourself, and take heart that there are some wonderful people here on your side and hoping that you feel some relief soon. hasmag.