so sorry you are in limbo - i've been there for 2.5 years ahhhh! it's awful, as I feel like if i had a name for this whole ore deal, then I could deal with it mentally much better.. I have small children, work and try to maintain a home, so I know how it is... its hard - physically and mentally! I go through phases where I am thinking - Ok lets figure this thing out.. and others where I am just over being poked and prodded and wasting time at a dr's office, as it never seems to get me anywhere.. I also used to work out all the time, be a runner, surfer, skier.. so it's a big change.. and hard to deal with mentally.. when just walking and swallowing can be a challenge, much less making a crying face to get upset about it all (sometimes my face wont' even allow me to do that ahhh)..

hormones make my physical symptoms much worse (do they you?).. good luck with it all, I hope you find answers soon!!