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Old 06-26-2013, 10:24 PM
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cait24 cait24 is offline
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Join Date: Sep 2012
Location: Newtown, PA
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10 yr Member
cait24 cait24 is offline
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cait24's Avatar
 
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
10 yr Member
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I am 5 days post-IVIG. I have some mild symptoms of a sinus infections but I am not sure. Neuro wanted to treat it anyway. My instinct tells me there is more than 1 thing going on. I think I may have an autoimmune hemolytic anemia that got aggrevated by the IVIG. I think I may also have Lupus as well. Neuro already has ordered an MRI, I think he is concerned about MS besides the MG. That would also fit.

I had the infusion at home, so additional IV fluids was not possible. I drink more than a half gallon of water every day. I was being weaned off pregnisone. I was down to 20 and they upped back to 30. I have a neuro visit in 2 weeks. I am not sure the IVIG has produced enough benefit for me to go through this again. But I hate to think of the alternatives, longterm steroids or plasmapharesis.

thanks
kathie
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