Also have been waiting 6 months + for a diagnosis. Had EMG, Repetive Nerve Conduction test & numerous blood tests with elevated creatine levels & ANA positive. Which the Neurologists told me there was nothing wrong with me and I need to see psychiatric help. Symptoms include muscle fatigue & weakness, ptosis right eye, hard to talk, weight loss, drooling, head drooping, hard to chew/choking, poker face, blurred vision, slow shuffling gait, tremor right hand, vivid dreams every night. Went to a rheumotologist who said it's not from depression. He did send me for a muscle biopsy which I just got back from today. He said if nothing shows up he'll send me to a muscle disorder specialist.
Yeah it sucks not knowing what's wrong, but you don't have a choice but to keep doing what you can and keep searching for the answer. It helps finding a doctor that believes you & will help you to find the answers. In the meantime do just you can do & try to rest when you can.