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Junior Member
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Join Date: Apr 2009
Location: shiloh, tn
Posts: 91
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Junior Member
Join Date: Apr 2009
Location: shiloh, tn
Posts: 91
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Abby, I totally understand where you're coming from...guess we all do..
I've used "I have a muscle wasting disease like muscular dystrophy", most ppl know 'bout MD & might understand us better ..very hard to explain MG or "neuromuscular"....or one might just say "my muscles don't work properly"...I'm glad you have a wonderful, understanding husband on your side..
It's been necessary for me to use an electric cart when in large places, airports esp, shopping etc...still can walk very short distance with a cane on some days, but the weakness is getting worse & boy how I hate that cart...but, if I try to walk it, my dyspnea gets worse & I can't breathe.... & then I've found that some ppl will try to help, if reaching for something on a top shelf or carrying heavy bags....they just don't want to interfere I think.....it's very disconcerting to be in this position in need of assistance & also reluctant to use it...
Tracy, I couldn't agree more....
Dottie
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