HI!
Wanted to share this. I woke up one night completely disoriented my sister had found me. I went to ER, they said might be seizure, but what to see if it happens again. I thought this must be a seizure because my whole body ached the next day and I slept for a very long time after. I went to my PCP and he said it probably was, because it was around 1 year mark and he had a history himself of this.I was told if you develop epilepsy it is usually soon after the injury or around the 1 year date.

I freaked out and was so depressed. I was terrified to be alone, didn't go swimming, etc. I know the EEG is not always right. When I got my EEG I had extreme pain and screamed out. My PCP said that is not normal.

So over months, I woke up more times disoriented didn't know my name, where I was for a few seconds. Years later I go another neurologist. He said "oh that is just a panic attack at night".

I did not believe him at all! I had a few bad panic attacks in daylight under major stress with whole body shaking, couldn't breathe, horrible chest tightness next day. This was different.

But it has now been over three years. When I do have extreme stress I get this. I have over time believed the neuro. I also would drink juice or eat a snack before bed because if I was hypoglycemic I would get it too. I do believe that it was my overworked/ fried brain, stress,anxiety, and I think it has to do with my severe neck injury as well.

I do believe that sometimes the oxygen gets cut off and contributes to this waking up disoriented (sleep apnea). Mark in Idaho helped me years ago and said check your o2 sat. Well, by the time I reoriented it never worked but I did get it one time and it was low.
There was one other poster who also had this. Of course yours may be different, but mine was not seizures. It is so hard to carry such a stress. Not to mention my first huge panic attack was the day after my doctor said I could have seizures. I would place pillows around my bed and be scared to go to sleep. It was such a hard time.

I think it is good to have another EEg for peace of mind. I know that you have a really severe neck injury as well, you would always help me before, thanks. Don't know if this helped you, just thought I'd share my experience.
Take Care!