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Old 06-29-2013, 09:17 AM
StephC StephC is offline
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Join Date: Jul 2012
Location: Fort Lauderdale, FL
Posts: 286
10 yr Member
StephC StephC is offline
Member
 
Join Date: Jul 2012
Location: Fort Lauderdale, FL
Posts: 286
10 yr Member
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I have experienced many, but not all, of the same issues and have had improvement in severity of issues following IVIG and likewise have observed deterioration in condition as IVIG starts weating off or as i do too much. No doubt there is delicate balance.

Although they say MG doesnt have cogniitve impact, i have also observed that i have trouble with memory, recall, etc especially noticeable when weak and have concluded, at least for me, it is related to the overall weakness.

I take 60 mg every one to one and half hours (12 per day) plus the 180 at night. I started every 6 hours and with doctor advice increased to the current dosing over about 5/6 months

I am aware that is more frequently than anyone else i know of and have had others question that frequency but it works for me.
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