Quote:
Originally Posted by cait24
strizzlow, are you on any meds besides mestinon? Pregnisone gave me great fast relief while waiting for IVIG approval. I would not want to be on it longterm but it was a quick fix for me. I had a bad reaction to IVIG and they upped my pregnisone again and I am feeling better. I am insisting on a thymectomy at my next neuro appointment in 3 weeks. 30% get remission and almost everyone else sees improvement. I am also going to ask for plasmapharesis while waiting to schedule the surgery and to take mestinon every 3 hrs. My MG continues to deteriorate at an alarming rate and the heat of the summer is making it worse. It has me very down too. Try to stay cool, it helps abate the symptoms a lot. Pregnisone also helped improve my mood and appetite,
let us know how you make out
kathie
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I take 60 mg of mestinon twice a day and 20 mg of Prednisone. I've been doing this for several weeks now. I don't see a great improvement to be honest. The mestinon helps with the fatigue in my opinion, but it's not significant for the weakness. I had a CT scan of my Thymus several years ago when I was diagnosed and it was ok. That's something my doc may want to check, I don't know.