I am at home and resting. I still feel very weak, I have a bad headache and a lot of muscle pain. Urine color is lighter but still tea colored.

Attending of substitute neuro called late yesterday. She only had a verbal read on the abdominal ultrasound. There were abnormalities of the liver and pancreas. He did not have a read on the spleen. Blood work will not be back until Monday. So I am sitting tight, resting until Monday. I ordered a combo oxygen, blood pressure, pulse meter online so I can monitor myself. I can tell my heart rate is fast with occasional chest discomfort but not as bad as it was, so I think I am improving. I am just concerned at how low my hematocrit has gone.

I don't think I will go through IVIG again. I am pushing for a Thymectomy as soon as possible. They upped my pregnisone to 30mg a day until I see the neuro in 2 weeks.

Thanks everyone with getting back so quickly. I was pinning all my hopes on IVIG since my MG has gotten worse, so I am very down right now.
kathie