Have you tried plasmapheresis yet? The only reason I went back to Ivig was that I was having such difficulty with everyone getting on the same page so I could get it started back. My neuro ordered it, but the nephrologist staff people do not want to be bothered with me as they have plenty of kidney patients to keep them busy.
Plasmapheresis made me much better, it's just being able to get it is the problem for me.