We have been riding the roller coaster ride since he got home. He had the shunt setting changed to 2.0 but each day has been insconsistant. He is acting like he is on sedatives but is not. he is still very tired and lacking of general energy and not interacting or connecting to us much. He is unusually snuggly though. He still has his head banging episodes and is not making progress. THe docs still don't have the answers. They think he could have caught a bug in the hospital but we have been home 17days now. oh and one even suggested he was having behvoir issues due to puberty! Which just conicided with his surgery! Are you kidding me? Yeh its hard to have faith in the neurosurgerons with talk like that. I really need to see him get better! WE are doing our internet research and still searching for answers because his quality of life is not good right now.

Susan