Thread: Hot spots?
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Old 07-02-2013, 08:06 AM
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Lynn Lynn is offline
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Join Date: Sep 2006
Location: Australia
Posts: 660
15 yr Member
Lynn Lynn is offline
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Lynn's Avatar
 
Join Date: Sep 2006
Location: Australia
Posts: 660
15 yr Member
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Hi Lilmama

I don't exactly know why, but I get intermittent bouts of icy-cold and burning sensation too - in my feet and legs - particularly in my left foot, and the burn is starting to radiate up to my buttocks and hip sometimes too.

It's all part of the sensory merry-go-round. Your body is sending mixed messages to your brain. My neuro has put me on Topamax and Dothep (one is an anti-convulsant, and the other is an anti-depressant) - not that those problems are the issue, he is just trying to confuse the 'pain gateways' that cause my issues.

So far, yes, it works in a limited capacity - I still have bad nights, but not near as many as before (which was almost every night - and lots of days).

Keep asking questions, and keep asserting your problems to your doc. For the doctors, it's easy from the 'cheap seats' to discount the things they can't see, but in terms of quality of life it can make a huge difference for you.

Good luck and I hope you get some relief
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Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993.
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"Thanks for this!" says:
lilmama (07-03-2013)