Hi! Welcome to the forum! I hope others sharing their experience helps a bit with the waiting game. I also tested negative 10 years ago when my symptoms first started (initially only double vision, then progressed to generalized weakness over about 9 months). I was diagnosed about 3 years ago after a long journey.

It's great that your doctor is willing to try the pyridostigmine. I hope that you see some results from that. My double vision has been a constant the past decade, but to varying degrees. Mestinon helps some, but does not clear it. High doses of prednisone helped the most, though that is certainly not sustainable over a long period of time. I'm now on a very small dose of prednisone and Gengraf (a long-term immunosuppressant). I also take Mestinon about 3-4 times/day.


I hope you find answers soon.
Cate