Quote:
Originally Posted by ianacoustic
Hi ali12,
Many doctor's are unfamiliar with movement disorders and some have never heard of dystonia. My wife had a doctor who reported that it was pyscho-somatic - "all in her head", it isn't and balance can be an issue. My wife suffers with dystonia (which took 18 mths for a neuroloigist to define) after she had an attack in his office. But she does suffer form unsteady balane and a couple of days ago while we were shopping she was quite tired and she found she couldn't walk where she wanted to go and involuntarily walked off to one side instead of straight ahead. So, it is NOT in your head and we only found specialist knowledge after going to a neurologist who specialised in Movement Disorders. Not all do and the one's that don't are not worth your time. We understand your frustration.
Best to you, ianacoustic.
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I was diagnosed by a neurologist with cervical dystonia. I received 6 shots of botox as first treatment, so far it has not worked. Its a very painful condition in the neck area.