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Magnate
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Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
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Magnate
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
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I apologize, I'm late arriving to your thread/post. I did get a message letting me know about your burning mouth - I too have had burning mouth syndrome since 2007. Only now am I beginning to feel some relief (perhaps the nerves healed themselves?) on 1 side of my mouth. The other side's still iffy... but I am medicated for BMS (burning mouth syndrome) so that's got the pain under control so I can live a normal life, and going off the medication, even slowly, is scary (I've been tapering off ... if I hit a burning pain bout as a result, I'll have to accept that I still need medication for this condition).
Long story short, if you have any questions about BMS, or wish to know more history, what I've tried, what discussions I've had about this syndrome, etc.. please send me a private message. I'll be glad to discuss with you, and hope that we can perhaps 'bounce' ideas off each other about this mysterious condition.
xoxo Laura
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2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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