thanks for the update. I am double sero negative too, but my SFEMG was positive for MG. If you cannot tolerate mestinon, what course of treatment were you hoping to pursue - steroids, IVIG, plasmapharesis, non-steroid anti-inflammatory? You may want to read up on them before your visit. I am sure they will want to put you on a treatment regime.

From posts, it seems the MGers in the UK have a harder time with diagnosis and treatment. Try not to be dis-heartened.

Good Luck and let us know how you make out. Other MGers on the site may be able to help you sort out the treatment option.
kathie