Quote:
Originally Posted by katiek
Hi. I was wondering how people explain crps to others. I moved to australia 4 years ago and am due to go home to the uk for a wedding next year. My concern is that when i left my crps was very mild and most people didnt know i had anything out of the ordinary wrong with me. After a flare up a few years ago the crps has spread. I walk with a very noticeable limp and sometimes use a cane. I have limited use of the effected arm. But my main concern is the permenant tremours and speech problems. I should be feeling excited about seeing my family and friends but i am dreading it. Does anyone have any advice
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first thing is i say REFLEX SYMPATHETIC DYSTROPHY SYNDROME..
THEN I SAY IT AS A CASCADING NEUROLOGICAL DISORDER.
THEN I EXPLAIN THAT IT AFFECTS THE SYPATHETIC AND PARASYPATHETIC NERVOUS SYSTEM WHICH BASICALLY CONRTOLLS OUR AUTONAMIC SYSTEM, OR ANYTHING YOU DONT THINK ABOUT. IE ORGANS, GLANDS , HARMONES, AND CHEMISTRY. THEN SAY IT TRIGGERS OUR PAIN CENTER ALL THE TIME, THEN I WORK FROM THERE. THEY EITHER WANT TO KNOW MORE OR DONT CARE TO KNOW MORE AT THIS POINT.... HOPE THIS HELPS..