Quote:
Originally Posted by I_Got_it_2
DAY 33 - NO SINEMET
It has been 33 days since stopping the Sinemet/Carb-Lev. I forgot yesterday to list dry mouth as a negative to the pills. But again, overall I feel great!
As an example, I bought a car several months ago. My right foot was doing things on its own. I wanted to accelerate but my foot would go fast then slow then fast. It was terribly annoying and embarrassing. In addition all that fidgeting eventually knocks the rubber cover off the break pedal. So I drive my new car with the rubber off.
Another driving example is my right arm. If I am too much "on", I have strength to drive but too much in my right arm. So I grip the steering wheel too hard until I can't grip it any longer, then I switch and try to put my hand under my thy or gripping the arm rest or my other arm. When I am "off" I can barely turn the power steering wheel!
Both of these symptoms disappeared on June 3 as I wrote to my Neuro:
The only returning symptoms from before June 3, 2013 is a very slight tremor In my right hand which exacerbates when I am nervous, and slight issue with walking normal. That is to say sometimes I have to think about how to walk.
That's all until tomorrow!
Jim
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DAY 34 - NO SINEMET
It's my 34th day without Sinemet with little notable change from yesterday. I've been thinking about writing about my day yesterday to give an indication of my before and after quitting SINEMET.
I got up at 8:30 am after retiring at 11:00 pm the night before (I have never had a problem sleeping). I had some cereal and coffee (I used to only take coffee as any food ingested would interfere with my pills). I worked a little on the computer (I can now type with both hands freely whereas before I used mostly my left hand) then I went to get showered (I used to have to wait to come "ON" then rush to do my shower/shave so I didn't get caught by my "OFF" (for the last 34 days I have not had "OFF" and "ON" times- I simply take my pills at 8 am and again at 8 pm, no matter what I eat. By the way, I have gained in excess of 12 lbs in these last 34 days mainly due to the fact food is no longer an enemy. AGAIN, I DO NOT HAVE "OFF" AND "ON" TIMES. HONEST.
My son arrives and we talk for a few minutes (here the hand shaking is at it's most pronounced in 34 days) and he leaves my grandchildren with us so he and his wife can go to Vegas for the UFC fight.
I then drive for over an hour to the Casino, and I park and walk (walking normally, not the rock in the shoe with toe curling walk). I play for an hour and go get my free buffet (again, no fears of what I eat and when will my accelerated "OFF" come, then I return home). I watch a little TV then drive to a restaurant for food for the munchkins and retire to my Jacuzzi with my wife and 2 yr old baby girl (she is so cute!).
That is followed by playing with the kids and going to bed.
Finally, I feel like my body needs some adjustment to the regained abilities (After all, I didn't deteriorate to my PK state in 34 days-it's taken over 8,000 days!). I think that as I have abused by overworking the left side of my body these 20 years to compensate for my right side disabilities I must exercise again to adjust. Anyway, it feels so good just to be able to drive and walk normally! And eat.
I hope this helps someone. I think we could use someone analytical who can look at the pills and maybe find volunteers to try the different combinations, with Doctor approval of course. Please remember, with me it took just two days to know something wonderful had happened-and the benefits have far, far, FAR outweighed the cost.
Jim