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Old 07-06-2013, 04:34 PM
Fortunatos Fortunatos is offline
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Join Date: May 2013
Location: Canada
Posts: 194
10 yr Member
Fortunatos Fortunatos is offline
Member
 
Join Date: May 2013
Location: Canada
Posts: 194
10 yr Member
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Quote:
Originally Posted by cait24 View Post
Just had more blood work drawn again this morning. I should have the results on Monday. I think I will be heading to a hematologist. I just got the manual CBC differential and it said there were a moderate amount of spherocytes. I looked that up and it means an auto-immune hemolytic anemia. Finally something someone will treat hopefully. I still have not had a call back from the neurologist. Even the GP did not mention anything about the spherocytes. I will call on Monday and get them to release the blood test and get a referral to a hematologist. If the hemoglobin is under 10, I will go to the ER.

Nobody is treating the CMV and I am not sure if I should be worried. CMV is only a concern in pregnant women or immunosuppressed patients like me on high dose steroids. It is suppose to be treated by anti-viral meds in immuno-compromised patients. I will pursue that on Monday too.

Just for reference when you have a bad reaction to IVIG, who treats the problem, your GP or the neuro that ordered the IVIG?

Besides Joe, has anyone developed a hemolytic anemia?

thanks
kathie
Kathy, Every time I think I'm getting close to having some understanding of the American health system, I get lost again. Will you help me with this? My question is: Why are you or others, having to orchestrate
your own appointments with specialists? Doesn't the PCP do this for you? As well, doesn't the PCP go over your test results with you?

Thanks in advance!!
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