Quote:
Originally Posted by eubanksdee
Hi everyone, my name is Dee, just to give a little background about myself, I have had neuropathy for four years my internal medicine doc or neurologist doc can't find any reasons why I have this. 2 weeks ago I had intense testing at the Nerve and Muscle center of Houston to try and find the underlying reason for my neuropathy. The results were, I do NOT have diabetes, nor any thyroid condition and all vitamin levels were good. However, after various skin biopsies were taken they revealed I have small fiber neuropathy. I am currently taking Gabapentin, 1800 mg/day, went up to 2400 mg and blacked out. I do not smoke or drink and cannot handle the pills very well so I went down to 600 mg yesterday. I am in such dire pain from my shoulders to my feet. Any suggestions from small fiber patients out there?
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Hi there Dee:
Welcome. My name is Melody I saw your other post. My husband could not take Gabapentin either. He got deathly ill. He used to take the Fentanyl pain patch. That was a miracle. But that was 10 years ago and they had to titrate him down because at the time you couldn't go over 125. He used to wear two patches and change them every 2 days instead of every 3 days. Neuropathy is a ***** isn't it? I myself have diabetic neuropathy. I found that by taking 5000 of the Methyl B-12 every morning, my neuropathy became virtually non-existent. I'd like to ask you if you know your B-12 levels. Because what the experts say is normal IS NOT NORMAL. My B-12 level is 2000.
Do you know your B-12 levels?
melody
And sorry if I don't respond quickly because I don't get notifications from this site if someone responds to me. I will check back. Others will also give you good input. Take care