Quote:
Originally Posted by pegleg
... For example, should you disagree with something a presenter says, rather than making a scene during the presentation, you could wait until the presentation is completed then nudge your way to the front and discuss it privately. However, if you feel that you are well-informed about a topi being discussed, by all means wait for the Q&A period and make your comments...
Peggy aka The Peacemaker lol
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Peace, Sister.
I do not favor disrupting a scientist's presentation. But the Q&A session after each presentation is for Q&A about the abstract of the scientific paper that has just been presented, and that you have not read, that discusses our disease at the molecular level.
Are there any presentations made by patients, that the scientists would be allowed to ask questions about?
Will there be a presentation about hidden, unpublished trials of Parkinson's drugs?
About Duodopa taking 10 years, and counting, to cross the ocean.
About DBS patients finding out that, three months earlier, there had been an "URGENT" recall?
About decisions made that resulted in a 2 year rolling shortage of sinemet, that was stage-managed?
About the almost total lack of services to PWP, at least in the rural area where I live. About the need for transparency and open talk about the good, the bad, the ugly and the beautiful?
About no one even bothering to follow up on what happened over time to the volunteers for the AMGEN GDNF fiasco?
No.
There will be a presentation of the new cherry-flavored agonist in bubble-gum format, showing that in the trials that were not hidden, it is better than a placebo. And then the audience can ask questions, such as, would it cost more than Duodopa to have a chocolate flavored agonist instead? And the answer will be, "that would require further research grants."