Hi shelly,

this is very interesting and sorry you are going thru all this now. I too see Dr. J and he gave me a diagnosis of Cervical Dystonia (which is basically when your neck is stuck to one side or you have spasms )and TOS because CV the diagnosis code that is approved for botox by the FDA. TOS is not so thats how they get around it.I know because I dont have CV symptoms and I asked dr. j about it. Later I had to fight with my insurance to get the botox covered, and I won because of the CV diag.

I have looked into Valtrex for nerve pain before-I have herpes and take valtrex for outbreaks and it helps the nerve pain that goes down my leg .I have mentioned it to some dr's as maybe helping with the nerve pain from TOs but never got any response.I will mention to Dr. j next time I see him My primary has suggested taking one a day to prevent outbreaks. (500 mg) .I think I will try taking it regularly to see if it helps the nerve pain in my neck and shoulder. I saw another article that I will try to find that relates Valtrex for Shingles with TOS. I will try to post it.

Whats also interesting is that there is a theory that Breast Cancer is caused by a virus. I have BC and also sinus issues, so in my mind I feel it could all be connected to a virus and/or inflammation. I would really like to find an integrative health Dr. who can help me with all of these things.

Questions:

How much is a high dose?
Who is your PT that is interested in the virus connection? Are you happy with him/her? I cant remember if you are still in S.M. I am in Westside too.

Thanks, JKL