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Old 07-08-2013, 07:14 PM
ginnie ginnie is offline
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Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
Default Hi Nancy

Welcome to Neuro Talk. You will find alot of us here that have PN. I am sorry your husband is suffering. I was on Morhphine for PN and two spinal fusions. Make sure if your husband weans off this medication, that he is under a doctors care. Its no fun. I still have narcotics, but try desperately not to take them. I have been on B12 shots for a year and I take some other vitamines. I do use lidocane patches and a compounded rub in which has 5 ingrediants that take the burn away. I can post them if you would like. I see a physiatrist. She treats the whole person. Her specialty is pain control. I was in a wheel chair last summer, and this summer I am walking I am better. I did some PT, for feet and neck, and reduced medicaitons. Believe it, I do feel better. I think what happens is we get a tolerance to the drugs, then they are not as effective. Thats my own take on it. So I have hydrocodone, and percocet. One script for percocet I have had since last Nov. I am just running out now. (Had 90). So what I did was taper off, change my diet, use the above products, PT, and take less medication. The combination may just work for your husband. I don't have it as bad as what your husband does, only in one foot, ankle and calf. Also I use bio-freeze, this helps too. Hope you can try some of these things and that it takes the edge off. This is a lousy condition, I know it, and so do all of us who have it. Your hubby isn't alone, and we will be here for the both of you. There has also been some experimental treatments for our service members for the most part. JAMA a medical journal has some information on it. Called Ketamine infusions. There has been some success with this with bad PN and RSD. I wish you all the best. ginnie
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