Quote:
Originally Posted by KathyUK
Yes I'm in a lot of pain, I also don't have the luxury of having any other options such as nerve blocks. I had facet joint injections twice that made things worse. Like many others my CRPS is one of a few issues I have, I also have degenerative disc disease, a reherniation of L5/S1 and sciatica that is severe enough to mean I don't have strength in my right leg at all and have had several falls that have landed me in hospital. To top it off I also have retrocalcaneal lumps in both heels which I have been told this week I will most likely need ops on too. I don't even have medication options any more, because I don't have a supportive pain doctor. My options are live with it or the SCS. If I hadn't explored other options to the full then I could understand the negativity but as it stands it's the only thing I've got to look forward to so I would prefer to keep it that way unless someone wants to pay for Dignitas. 
On a side note I had my wheelchair assessment (over the phone?!) and she said there is a 6 month plus waiting list. Joy. |
Oh, Kathy,
I'm so sorry I was not aware of all your ordeals, I sure hope I didn't offend you. I hope something happens that you get your wheelchair sooner 6 months seems awfully long!
I had my trial SCS yesterday and so far it feels like an entire sleeve of electrodes vibrating. I think it is a better sensation than the pain. I will post more on that later.