Hi Kathie

You are so good to me - you always reply and give such good advice. I too have lost my confidence and independence and am also a single parent. Before this illness I flew for Virgin Atlantic travelling all over the world and drove the 3hr commute to London at just 19yrs old, now I don't trust myself to drive into town! I still have no medication but always take food and water...and usually a companion wherever I go but I beat myself up for that, I miss my confidence and independence-I've almost forgotten what it feels like! I am so lucky to have great parents and friends who come with me/take me places with my daughters but I feel guilty that they miss out on things because of me as there are times when I know I avoid car trips and days out alone because I'm scared I won't be well enough to look after them properly if I become unwell! I know I can't live my life worrying about things that may never happen but while they are so young I feel it would be irresponsible to put them in a situation where it is a possibility.

I hope you get your treatment sorted soon, I do keep up with your posts and I'm sorry I can't offer any help as I have no experiences with any of the medications or treatments. Will be keeping everything crossed for you.

Thanks again for your advice
Eve.x