I am still only now in month 11.5, so I am still learning. I have been doing vision therapy for 7 months and vestibular therapy for 2 weeks.

I know that it seems so difficult that not many specialists know about this condition. I have been to the UC Berkeley's binocular vision clinic, which knows a lot about mtbi and vision issues. Even they don't know why I am not improving.

The truth is that each case is unique, and even when they do know what is the cause of the issue, there isn't much they can do.

Even with prism glasses and the exercises, my vision improvement has plateaued. I still have daily headaches. No one is sure what is going on.

I take breaks from the exercises and glasses. I don't watch too much tv or read for too long (30 minute blocks; 2 hours at most a day). I've been on sick leave for one year and will be on leave again for next.

I am going to UCSF vestibular clinic in September because there must be some vision-vestibular connection. I am beginning to realize that even if we do get to some root cause, this is my new reality for awhile.

My best advice is to listen to your body. If it hurts, stop. The prism glasses and exercises can help, but you should not expect instant results. You are rebuilding new pathways and this takes time.

If the transit to the appointment is too taxing (7 hours is all day!)-don't go. The best you can do for yourself is to rest-don't underestimate the time and energy required to travel.

I hope you find some respite--