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Old 07-11-2013, 12:06 PM
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Quandry Quandry is offline
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Join Date: Nov 2012
Location: Arizona
Posts: 131
10 yr Member
Quandry Quandry is offline
Member
Quandry's Avatar
 
Join Date: Nov 2012
Location: Arizona
Posts: 131
10 yr Member
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Thank you all for your responses. I am very happy that there is a doctor who is willing to fight for me and it seems that in these days he is a rare doctor. I do hope that the Mayo clinic can get to the bottom of what is going on.

One thing that bothers me about the Neurologist is him saying that my reaction to pyridostigmine is psychological. I take 60 mg four times a day. I think this amount might make me weaker if I was normal. Sure, it does make some muscles in me weaker, but my breathing is improved. I may be overdosing some muscles, but breathing is more important than anything else and the majority of muscles benefit from this. If it were psychological then I would have continued to take other meds to appease my doctors, but I haven't. I refused prednisone because of a bad reaction. I refused Cymbalta because of a bad reaction. I've refused Imuran because of a high cancer risk due to many family members with cancer. I've even been scoffed by this Neurologist for treating my jaw pain with Capsaicin and by chewing on hot peppers to relieve pain along the gum line, but I know it helps. So, if I know the difference between what works and doesn't work, then how can a doctor be so dismissive and accuse me of imagining that pyridostigmine works?

The whole time I spoke with this doctor he was demeaning and arrogant. He hammered me about having both negative and positive results in the past. He hammered me about everything as if I was on trial with remarks like "Oh, so you had negative results before, and Oh, you had this before, blah, blah, blah. If I signed a release of information, shouldn't he know all this?

I can't always remember to tell a doctor every detail with so much going on. Don't doctors do anything more than just review their own notes? When I told him about chewing on jalapenos for my pain he said "So, you rub jalapenos on your gums." I said, "I chew on them." He said again, "So, you rub jalapenos on your gums." It was like whatever. He kept changing whatever I said. Everything I said he kept misinterpreting. He totally dismissed some of the facts he noticed on my first visit. I told him my legs weren't as bad as my upper body, but when he had me lift my leg while in a sitting position, it was him that said my legs were weak too. How can he say he's going to close the book on me without following up? How can he twist things that I say around like a sleazy lawyer? The other Neurologist I used to go to was trained under this one and now I can see why I never got results. I'm am just so frustrated because it seems that some doctors don't do their homework anymore, but I do really appreciate that the Rheumatologist is fighting for me and is willing to think outside the box.
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