Quandry, I have a suggestion for you. Write a summary of your symptoms and medical history from a patients perspective in chronological order. Reread it and correct it over and over, and take out and personalization of treatment by other doctors. You will need this when you go to Mayo. That way you will not forget anything, the doctor has a hard copy for future treatment reference and you will be able to focus on the more important symptoms. That way when you come back from Mayo, you can use this when you go to your NEW neuro that has no preconceived notions and will be receptive to Mayo's definitive diagnosis.

Don't let them make you play their game or get substandard healthcare. You deserve better than this. Move on to a new doctor who will treat you and your disease professionally.

Good Luck,
kathie