Hi Beannie, I'm brand new here, but have been in the docs offices for years getting diagnosed (they had no clue, was seeing rheumatologists for years). My neuro said that new literature points to the idea that the bloods are almost useless, because they are most likely many many antibodies that can cause mg, and our current system tests for very few.

I am waiting for my MuSK and LEMS, but he already gave me the mg diagnosis. I have all the LEMS symptoms with dysautonomia but he still strongly feels that it is mg (from the SFEMG), he says mg does NOT fit in a box and his patients present in very different ways. I have sensory weirdness and so much other garbage, he could see through the mess and I finally have a diagnosis. I hope that your doctors listen to you and take you seriously, it took me an unbelievable number of years of ER visits to get a doc with a clue. Good luck to you!