Hopeful thanks for the input. I live in Canada, but I do have a urologist. I have had 2 cystoscopies and there is nothing wrong with my bladder .
But no one has even suggested that it was nerves. Only after being diagnosed with PN did I link the two together

Syn- wow. I am so thrilled that something can completely relate. You're the first person since this started. Pls pm me to chat if you want. It is so hard for people to understand what I mean by burning in my bladder and my thighs. I called ambulance and they didn't know what to do . I have also had many times where I feel a fullness, pinching,and/or pressure in my pelvic area.
I tried oxybutinin-that was the first Med that I forgot the name for.
I can't imagine what pt for the bladder consists of. I did go for pelvic pt but didn't stick with it and was too expensive

Right now it feels full and I just went. It just burns inside and out and nothing seems to help.
Pain pills don't work obviously. Cranberry is useless as it is for preventing infections.
Growing up I had infections every couple of months.

Thank you for clarifying what the tests are for autonomic neuropathy.
I don't get constipated, but I can't eat a lot at a time -and come to think of it, this has worsened over the last few years. I feel like I can't move I am so full. Just after a normal sized dinner. I also have burning in my stomach that no one understands.
Please, if you think that this may be autonomic by the sounds of it,let me know and i will start the research and ask my doc for the tests.
My sweating is irregular but only really since being on the fentanyl patch

Thank you thank you thank you!!