Hi lined-in-silver
I have found this website of a neuropathy support group. They have a lot of articles.
www.neuropathysupportnetwork.org
I can emphazise with you.
When you said doctors do not understand. I had doctors saying the same things to me, stating that I must be depressed. But I think perhaps anxiety and depression probably reflects in our faces, because we are so frustrated and feeling so ill.
I want to give you this advise: Do not give up, and remember, that a lot of times the doctors just do not know, and/or they do not care to researc further, so they just leave the patient like that. You must be your own advocat. Keep on research ( even though, one would think, that would be the duty of the doctor) A lot of doctors(mine included) like to just say: diagnosis Ideopatic Neuropathy. And we know of cause, there could be 100 of reasons for your neuropathy. But the sooner you find the reason, the sooner the doctor can treat the underlying cause.
Have you had tests for Diabetes? Blood test HgAiC, FBS, Glucose Tolerence Test, etc?
Test for thyroyd problems?
Tests for all the different Autoimmune Diseases that can cause neuropathy?
I will tell you. In the last 2 years I have seen 6 neurologists. I did not care, I needed answers ( and I still do not have all the answers)
I dumped 4 of them, I now have 2 good ones.
I have found a good doctor at a university teaching and research. He specializes in neuropathy
Most general neurologists do not know a whole lot about it. They just think we all have diabetes.
ASK YOUR DOCTOR to REFER you TO A SPECIALTY NEUROLOGIST.in neuropathy
Do you need to see a Rheumatologist? to rule out aotoimmune disorders that can cause this symptoms you have.
Right now, I seem to have things in perspective.
Important:
Try to have as many possible tests and procedures necesarry to diagnose. Once you have test results, that will back up for you and your doctor.
by the way, I have carpal tunnel too. with all the other stuff
All the best