advertisement
Closed Thread
 
Thread Tools Display Modes
Old 08-20-2017, 09:53 PM #981
PamelaJune's Avatar
PamelaJune PamelaJune is offline
Senior Member
 
Join Date: Dec 2013
Location: Where my heart is
Posts: 1,140
10 yr Member
PamelaJune PamelaJune is offline
Senior Member
PamelaJune's Avatar
 
Join Date: Dec 2013
Location: Where my heart is
Posts: 1,140
10 yr Member
Default

How are you coming along SC. you're in my thoughts, & I hope you can draw strength from the people here on NT who are here for you & firmly believe you've got this. You can do it. Early days are early days. Things will improve with time, believe it, believe me, believe us. The mind is all powerful, we can create a different narrative, we can overcome negative bring me down thoughts. It's not easy, we have to work at it. I watch Dr Jordan Nguyen and Catalyst when I'm feeling in despair. It never fails to jolt me. I hope you are able to access the links I gave the other day. He truly is remarkable. There is hope for PN sufferers with biomedical, true hope.

Quote:
Originally Posted by SecondChances View Post
Forgive me for always being so whiney and negative but I can only share here. I live alone, I like to live isolated and insulated and only come to life when I am around my children, but that is only once every couple weeks and I refuse to ever complain to them and I want to keep that time special and always be their "Shelter from the Storm". You all are my safety and only here do I feel I can share. I don't want to suck the life outta you all but I am struggling.

The PN has been horrific! I had to get out to go food shopping as there was nothing here to eat. Clearly poor nutrition is not my friend so I got myself out to the market. Sometimes distraction and movement helps but not today. I had to leave with hardly anything.

I am so scared! Even my hand is going limp and numb. Crap...I am so despondent just now. The day food shopping becomes a major challenge then this is not a life worth living, nor the efforts to stay sober.

I am in serious need of a friend and words of encouragement.
__________________
I can still remember what life was like before pain became my life long companion

Last edited by PamelaJune; 08-21-2017 at 06:10 AM.
PamelaJune is offline  
"Thanks for this!" says:
ger715 (08-22-2017), SecondChances (08-21-2017), Wide-O (08-21-2017)

advertisement
Old 08-21-2017, 03:25 AM #982
Wide-O's Avatar
Wide-O Wide-O is offline
Member
 
Join Date: Dec 2012
Location: Europe
Posts: 609
10 yr Member
Wide-O Wide-O is offline
Member
Wide-O's Avatar
 
Join Date: Dec 2012
Location: Europe
Posts: 609
10 yr Member
Default

Quote:
Originally Posted by SecondChances View Post
at least I got dog food but then when I looked at my poor beast I felt even he deserved a better life. He has not had a walk in the woods or a park in a long time and if I do get out for a stumble about my block, the last thing I need is him pulling me along and challenging my balance.
Your puppy will understand. Dogs are fantastic creatures incapable of holding grudges. As long as he/she is with you, it's all OK. Talk to hem/her. Explain in detail what you are going through. Dogs may not understand words, but they understand a lot more than we give them credit for. Tell the dog about the pain, about currently not being able to go romping, but that as soon as it's an option again, you will make up for it. Also, do you have a dog walk service near you? We used that when we both didn't have the time because of work during the week.

The only things dogs need and crave are food and love/attention, and not necessarily in that order.

PJ, holy *****! Yeah, you can be 100% sure the cessation is what caused the seizure, that's what Xanax does. The comparison to heroine fails when it comes to withdrawal: you don't die from heroine cold turkey. You will feel horrible(not personal experience for once), but you will not die. With benzos you might, and especially with Xanax.

I had a long talk with my GP after rehab. They kinda know the risk, but not really. I did open her eyes, based on what I learned in rehab, and some research. I can only hope they will be more careful with allowing prolonged use.

Irony: one of the best ways to prevent the seizures from both alcohol and benzos is... a high dose of benzos. The doctors/nurses in rehab really did a great job there. Based on your drug of choice and your intake, they calculate a regimen. In my case it was 90mg of Tranxene (Clorazepate) the first day, then 60 mg the next day, 40, 20, and then 0 after that. This way they prevent getting hooked on it, but they also prevent seizures. The drug is specifically known for use in withdrawal.

Quote:
Dosages as high as 90 to 120 mg per day may be used in the treatment of acute alcohol withdrawal.
PS: in case anyone thinks about it: DO NOT TRY THIS AT HOME. They monitored me throughout the days and even nights, took my vitals every 2 hours, logged those, compared them with what they should expect, etc. It felt very safe, and it was one of the big benefits of going to a rehab with real docs, nurses, and psychs.

I did walk around like a zombie those first days. But no lasting damage. The rebound anxiety was horrible though.
Wide-O is offline  
"Thanks for this!" says:
ger715 (08-22-2017), kiwi33 (08-23-2017), PamelaJune (08-21-2017), SecondChances (08-21-2017)
Old 08-21-2017, 02:50 PM #983
SecondChances SecondChances is offline
Member
 
Join Date: Jan 2017
Posts: 238
5 yr Member
SecondChances SecondChances is offline
Member
 
Join Date: Jan 2017
Posts: 238
5 yr Member
Default

PamelaJune...what a nightmare. Thanks for sharing and so very sorry you went thru all that. I believe doctors are far knowledgeable about Zanac and opiods as of late but still fail miserably with other drugs and their potential side effects and consequences. Personally I try to stay away from them but I am in a very dark place lately and if things do not improve I may need some help from anti anxiety and anti depressants. I am not suicidal but I flirt with thoughts of how lovely it would be to just go to sleep forever.

Wide-O, pets are great and yes, you are right.... they don't need much. This sweet old guy gives me purpose and he is getting up there in years too so likely not adoptable. We are stuck with each other, for better or worse.
SecondChances is offline  
"Thanks for this!" says:
ger715 (08-22-2017), kiwi33 (08-21-2017), PamelaJune (08-21-2017), Wide-O (08-21-2017)
Old 08-22-2017, 12:45 AM #984
ger715 ger715 is offline
Magnate
 
Join Date: Jul 2011
Location: Illinois
Posts: 2,180
10 yr Member
ger715 ger715 is offline
Magnate
 
Join Date: Jul 2011
Location: Illinois
Posts: 2,180
10 yr Member
Default

Quote:
Originally Posted by PamelaJune View Post
According to the DDO xanax is more addictive than Heroin. Yet we were unwittingly prescribed this drug. I had no idea, DB learned I was taking it in 2012 and told me. To this day, I believe my cessation of xanax and the CSF leak caused the grand mal seizure in August 2012. The day I broke 4 vertebrae and 2 ribs when they did CPR.

No one told me how dangerous the drug was /is. I was prescribed it in 2010 to aid with my PTSD. No one told me not to stop taking it over night, in fact nobody told me anything until DB told me it's as addictive as heroin and I thought holy crap I need to stop this stuff I don't want to be addicted to anything. So I went from 2x 2mg a day to zero on August 3rd, I had a rhyzotomy on that day and took 1mg in the evening, none after that. The headache started on the Saturday, by Friday I was in hospital and on Monday night 60 minutes after I saw the Neurosurgeon I had the seizure. I recall nothing from 7pm to 10pm. Around 10pm I asked to speak with DB on the phone, the nurse told him nothing to worry about she's just had a panic attack. I was restarted on it 3 weeks later when they realised I'd fractured T3,4,5&6 and ribs 8&9. My anxiety was out of control, I couldn't believe they discharged me from hospital with all those fractures and the nurse on discharge viciously stating I'm nothing but a drug addict wanting attention.

Benzo's who knew...

[/I]

I guess I didn't give much thought to the use of Benzo's until now. One of the meds I have been taking daily for years, dealing with mostly the muscle spasms rather than anxiety, is Valium.

Since I started taking it, the muscle spasms on the side of neck and shoulder has improved. For years I wasn't able to sleep on my left side because of the muscle pain. Now I can.

Am now a bit concerned because Valium is part of the benzo family.....Hymmmm ...




Gerry
ger715 is offline  
"Thanks for this!" says:
PamelaJune (08-23-2017), Wide-O (08-22-2017)
Old 08-22-2017, 01:11 AM #985
PamelaJune's Avatar
PamelaJune PamelaJune is offline
Senior Member
 
Join Date: Dec 2013
Location: Where my heart is
Posts: 1,140
10 yr Member
PamelaJune PamelaJune is offline
Senior Member
PamelaJune's Avatar
 
Join Date: Dec 2013
Location: Where my heart is
Posts: 1,140
10 yr Member
Default

I feel for you Gerry, I know your thoughts, it's why in other posts along the years I've agonised over the times I've been told insistently by the GP or surgeon with firm instruction to take xanax, I know what I went through. Only last month in hospital going for the Gallium scan they gave me 1mg Xanax but as I was on so many other drugs along with Valium I was unaware of the effects it usually gives me.

Yes Valium is a part of the Benzo group, it is known for forming body dependence but I'm told it is not like xanax which is significantly addictive. If you were to ever drop your Valium take be sure to do so with GP supervision and an open mind to GP's sometimes are not as all knowing as we wish they were. They are generalised for a reason, not specialised. So if you feel your GP is not on board with your concerns, talk to your PM. Ironically there are drugs available to help you titrate off of these drugs with little angst. But you have to ask for them, and given you only take them for a short time to aid getting off the original drug, dependence doesn't form.

I'm not talking in your case Gerry, your PM will be the only one for you to ask is the amount of Valium you take still required to manage your many ailments. So no thinking cold turkey, or I'll have a go and cutting down on my own xx

Quote:
Originally Posted by ger715 View Post
I guess I didn't give much thought to the use of Benzo's until now. One of the meds I have been taking daily for years, dealing with mostly the muscle spasms rather than anxiety, is Valium.

Since I started taking it, the muscle spasms on the side of neck and shoulder has improved. For years I wasn't able to sleep on my left side because of the muscle pain. Now I can.

Am now a bit concerned because Valium is part of the benzo family.....Hymmmm ...




Gerry
__________________
I can still remember what life was like before pain became my life long companion
PamelaJune is offline  
"Thanks for this!" says:
ger715 (08-22-2017), Wide-O (08-22-2017)
Old 08-22-2017, 05:02 AM #986
Wide-O's Avatar
Wide-O Wide-O is offline
Member
 
Join Date: Dec 2012
Location: Europe
Posts: 609
10 yr Member
Wide-O Wide-O is offline
Member
Wide-O's Avatar
 
Join Date: Dec 2012
Location: Europe
Posts: 609
10 yr Member
Default

Quote:
Originally Posted by PamelaJune View Post
Yes Valium is a part of the Benzo group, it is known for forming body dependence but I'm told it is not like xanax which is significantly addictive. If you were to ever drop your Valium take be sure to do so with GP supervision and an open mind to GP's sometimes are not as all knowing as we wish they were.
This is correct and vital: the danger is not so much in taking it (except when mixing with alcohol), but in getting off them without tapering. You really need a couple of weeks, do it very gradually, and pay attention to your body/brain.

Fortunately, valium is nowhere near as dangerous as Xanax, and if it helps you sleep (and nothing else will), and you are not upping the dose constantly, you might even consider staying with it. Talk to a doctor to make sure (I surely am not one!). No reason for panic or worry, just something you need to be aware of.
Wide-O is offline  
"Thanks for this!" says:
ger715 (08-22-2017), kiwi33 (08-22-2017), PamelaJune (08-22-2017)
Old 08-22-2017, 07:23 AM #987
kiwi33's Avatar
kiwi33 kiwi33 is offline
Grand Magnate
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 3,093
8 yr Member
kiwi33 kiwi33 is offline
Grand Magnate
kiwi33's Avatar
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 3,093
8 yr Member
Default

My experience of benzodiazepines is limited compared to the others so I am not sure how general it is.

I spent a bit over a month as a patient in a private psychiatric hospital, taking the first steps in dealing with my alcohol abuse and clinical depression. Initially I was a bit agitated so one of the psychiatric nurses suggested Valium, taken once a day, in front of her (same procedure as for any other prescription drug) - they were rightly very strict about this. It worked for me so after a while I told her that I didn't need it any more - she just smiled and agreed.

Another patient was less fortunate. From what he said in our regular morning check-in session, run by a clinical psychologist, he was severely addicted to alcohol and Xanax. From cryptic comments from the clinical psychologist (their medical ethics were impeccable), he was monitored 24/7 including being on suicide watch.

When I left he was still there but I think had shown some signs of improvement.
__________________
Knowledge is power.
kiwi33 is offline  
"Thanks for this!" says:
ger715 (08-22-2017), PamelaJune (08-22-2017)
Old 08-22-2017, 10:18 AM #988
SecondChances SecondChances is offline
Member
 
Join Date: Jan 2017
Posts: 238
5 yr Member
SecondChances SecondChances is offline
Member
 
Join Date: Jan 2017
Posts: 238
5 yr Member
Default

I know a woman who just lost her son to heroin. It all started about 8 years ago when he was prescribed opiods after his car crash. He was only 28.
SecondChances is offline  
Old 08-22-2017, 12:01 PM #989
SecondChances SecondChances is offline
Member
 
Join Date: Jan 2017
Posts: 238
5 yr Member
SecondChances SecondChances is offline
Member
 
Join Date: Jan 2017
Posts: 238
5 yr Member
Heart

I had to run out for 2 quick errands. Unfortunately one was right next door to a liquor store. Oh wow, I was white knuckled getting to my car and staying outta trouble. I did it but that was quite a challenge. I remembered Icehouse saying "accountability" keeps him sober. I did not want to come here and tell you I failed and in the same breath complain that my legs hurt. You all saved me.
SecondChances is offline  
"Thanks for this!" says:
ger715 (08-22-2017), Icehouse (08-22-2017), kiwi33 (08-23-2017), PamelaJune (08-23-2017)
Old 08-22-2017, 12:19 PM #990
SecondChances SecondChances is offline
Member
 
Join Date: Jan 2017
Posts: 238
5 yr Member
SecondChances SecondChances is offline
Member
 
Join Date: Jan 2017
Posts: 238
5 yr Member
Default

I would NEVER have gone to that store right next to the liquor store if I had not felt strong and in a good frame of mind. OMG.... that was so difficult! I had a mini anxiety attack when I got home and am still reeling. I have clonepin here and if I can't settle down I will need take one. That urge was so powerful and came outta no where. It was frightening!
It is so confusing that in addiction we crave the very thing that makes us so ill and unhappy. Deep breathes and this posting has been helpful. I will skip the clonie but will need to be more mindful in where I go shopping. Lesson learned.
SecondChances is offline  
"Thanks for this!" says:
ger715 (08-22-2017), PamelaJune (08-23-2017)
Closed Thread

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Alcohol Consumption and Neuropathy Augie Peripheral Neuropathy 20 10-22-2015 06:18 AM
alcohol related neuropathy cheryllawson Peripheral Neuropathy 11 04-27-2008 03:59 PM
alcohol related neuropathy cheryllawson Peripheral Neuropathy 0 04-24-2008 09:42 AM
Thalidomide-Induced Neuropathy buckwheat Reflex Sympathetic Dystrophy (RSD and CRPS) 0 05-26-2007 10:52 AM


All times are GMT -5. The time now is 12:43 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.