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Old 04-09-2015, 05:49 AM #1
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Dubinin, your "eating well" plan looks pretty good to me.

This is just a thought but maybe add some slow-release (low GI) carbohydrate foods to it - things like brown rice and whole-grain bread products.
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Old 04-09-2015, 09:47 AM #2
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Welcome Dubinin.
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Old 04-09-2015, 10:35 AM #3
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I notice you listed niacin in your supplement list.

If you are taking real niacin ...that can cause skin paresthesias and tingling flushing etc.

Niacin in the form of niacinamide does not cause this reaction.
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Old 04-13-2015, 04:16 AM #4
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Quote:
Originally Posted by mrsD View Post
I notice you listed niacin in your supplement list.

If you are taking real niacin ...that can cause skin paresthesias and tingling flushing etc.

Niacin in the form of niacinamide does not cause this reaction.
Thank you for your knowledge. I have read many of your posts, or did so prior to joining. you are a light and inspiration to many.

I am glad to say that I'm taking niacinamide forms
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Old 04-13-2015, 04:22 AM #5
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Update:
=========

I noticed some muscle wastage across upper pecs, forearms, biceps, which has been arrested by B1 incrementation.

Added iron on noticing some breathlessness after running.

Added zinc and drinkable (non acidic) vit C.

Right then... Past three days, very very few paresthesias.

Friday - no paresthesias, but incredibly fatigued. Longest sleep in months, woke up to wanting more sleep.

Saturday, Felt about 50% of the degree of yesterday's fatigue. Managed to do some light runs. Felt like hell afterwards. did a bodyweight circuit, 100 lunges in 6 minutes ( 40, rest, 40, rest, 20) made my legs feel like lead. Then followed up with 30 minute stationary bike cardio dealy 4 hours after that.

Sunday, A lot less fatigue, some vague tingling in left sole, very light "cobweb" feeling back of right hand. Very brief 5th cranial nerve region feeling of being touched by a ghost (on cheek).

In the middle of completing a two hour work out.

Belated Happy Easter to Ukrainian people and Egyptian people, and to all and sundry who observe the orthodox calendar. Belated Belated Happy Easter to all who observed the imperialist calendar a week ago.
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Old 04-13-2015, 04:08 AM #6
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Welcome Dubinin.
Hello, Kitt! Thank you for your welcome!

Your signature is intriguing and it reminds me of a scene from the 1968 version of Flowers for Algernon.
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Old 04-13-2015, 04:07 AM #7
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Quote:
Originally Posted by kiwi33 View Post
Dubinin, your "eating well" plan looks pretty good to me.

This is just a thought but maybe add some slow-release (low GI) carbohydrate foods to it - things like brown rice and whole-grain bread products.
Super idea, and I will commence that today, Kiwi! Thank you for your ideas.
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Old 04-27-2015, 05:29 AM #8
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Default Update: April 27, 2015

Some days I am symptom-free. Other days, left sole paresthesia (especially after sitting with some compression of sciatic nerve in the site of hamstring), right ulnar nerve paresthesia (numbness and tingling of right two smallest fingers) last for hours. Hanging right arm by my side relieves the odd sensation. Sitting on a chair other than the one I am in now relieves left sole tingling to some degree.

Chronic myopathy was also present (prior to paresthesia onset of April 3). Glad to say that this situation is now resolving with muscle mass returning to left biceps and muscles of the forearm. (Noticeable bilateral loss of muscle from quadriceps, gluteus; gastrocnemius and anterior tibialis - with right side more affected). Pectoralis major: noticed bilateral loss of muscle in the course of a week, which is now resolving.

Persisting with thiamine (and all other vitamins as listed earlier in this post).

I'm glad to say that, generally, there is nothing new to report, in terms of symptom progression. Very mild compared to the first two weeks, if present at all.

Noted in journal (sorry, exact publication forgotten) that very marked muscle loss and paresthesias including sensory loss and depressed deep tendon reflexes slowly resolved (after 15 months, with 6-week inpatient hospitalization of pt. Hx of alcohol abuse). The pt was in a far worse state than I am in.

Considering my condition to really be dry beri beri with chronic myopathy already present.

Romberg's sign not present. Tinel's sign present three days ago. Cannot seem to make it occur again.

No liver signs at present - with no palmar erythema, ascites or abdominal swelling; no obvious jaundice of skin.

No kidney signs.

No signs of hypogonadism or hyperestrogenism.

Apparent fat deposition in places where muscle atrophied seems consistent with myopathy.

Only concern: thiamine malabsorption is present in cases of liver disease. So it is important to regularly check thiamine to ensure correct storage and phosphatization.

Sudden reduction of paresthesias and consistent levels of paresthesias with regular absence of symptoms seems to very very generally indicate that liver function is within normal limits.

Biggest concern right now - when will these tingling sensations get lost? Time, time, time. Time is so narcissistic.

This is now 3 weeks and 4 days after initial and rampant onset. Can jog upstairs, can exercise (on good days) for 3 hours, can carry load in storming conditions for two hours. (Walking, jogging elicits tingling in both soles, not very different from just normal sensations of having "used" my feet).

Pushups are easier. A pump (physiological engorgement of muscles with blood through exercise) is easier to elicit now. Was almost absent before, which was curiously odd.

Sleep is easier to come by these days. But for the last three nights I have been giving a "running commentary" in my dreams, which is very exhausting. A lady in one dream was gathering flowers, or something, from a garden bed. And there was I hovering in the dreamscape ether above her, and narrating the scene. Very odd. But these things have happened to me before and always abate. I work with a lot of people for long hours in a day and I often go to bed exhausted without having first properly unwound. So not unusual I suppose if I continue to analyze and provide narratives on the other side of life.

Um. That's all, I guess. Rough notes only. I am tired today. (Which is a good sign in this case).
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Old 05-01-2015, 05:53 AM #9
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Low grade and continual paresthesias - L sole, L middle fingers, Right smallest fingertips. No signs on waking. Seemed to be onsetting at about the same time every night. Possibly onsetting later and later as the weeks roll on.

Arms are coming back to old form. Upper legs and especially left calf show some muscle loss. Upper legs- muscle loss above outside knee joint. Calves and anterior tibialis both legs show signs of atrophy. Expect they will suddenly re-appear just as my arms re-appeared. No strength loss. Have commenced intensive exercise for legs to promote (re)growth by stimulating hypertrophy pathways.

Maintaining vitamin regimen with addition of 1000IU Vitamin E daily in two doses.

Most aggravating and troubling part of this - persistence of paresthesias, even though not as intense as April 3. And noticeable loss of muscle. Tone is okay, now. Some flaccidity before. Better tone now. Muscle loss seems to happen very quickly, and comes back very quickly - I noticed this pattern a while ago during main part of the fight with myopathy.

Some abnormal sense of pounding in extremities - toes, esp fingers, when vigorously used - including trying to play guitar earlier.

Twitches in right upper pec and right tricep.

(Acute myopathy -dx approx Feb 2014. Chronic myopathy from August 2014 - very approximately).
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Old 05-01-2015, 10:22 PM #10
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Your notes are insightful...thought you should know. Helpful to others, keep at it.
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