Icehouse, I hope that your therapy group goes well.

SecondChances, that is good about your liver. I think that, as always, Wide-O has offered you wise thoughts. Please keep posting here - we are all here for you.

Icehouse, best of luck tomorrow. I am looking forward to hearing how it went.

Well, I have high hopes of finding out what tests can be done, what is causing my stagnation and such, BUT, I have been told that I have to pay near $2K before insurance will kick in....

!@#$%

So, I am not sure what help I will actually get as the price will be too high to take full advantage.

One step at a time and I will fill you all in tomorrow afternoon.

I know it's easy for me to say, but please... stay skeptical before splashing out 2K.

Can you ask about reference customers, testimonials, at least a vague description of the science behind it, anything. If you PM me the name of the company or treatment, I can have some snooping around.

I mean, it's not impossible, but if there are really cures out there that will regenerate nerve growth at the periphery of our bodies (that is the only real "cure"), it somehow would have made a big splash in medical journals. Because all those millions of diabetics would also go: "wait a minute now!" It's very different from finding ways of managing/blocking pain.

Not trying to put you off, but I just know how I AM, and I usually make mistakes so other people don't have to. ;)

Again, for you it will be motor nerves, different case from mine, so I have to put a caution to my caution if you know what I mean. I seem to have 100% control over them - for my age I mean - I can dance, I can walk quite some distances without any visible waggling or strange motion, even "runway type" walking. For me it's purely pain and (lack of) sensation (although still enough to know where my feet are...) There are many types of PN, (and even more causes) which makes it sometimes hard to compare notes.

Eyes wide open!!

Yes, I have no pain, but I lack the fine motor skills. I think specialized PT may help which is what the meeting tomorrow is about.

Well if it's PT it could theoretically work - as the brain may adapt through exercise and learn to slightly change it's "commands" to the muscles based on the information it gets from the (damaged) motor and (intact) sensory nerves. But then I'm assuming quite a few and quite intense sessions, perhaps over a long period. It would literally alter the working of your brain in that department, which is something I know they *can* do. A sort of re-calibration. Like learning to breathe again when you hyperventilate.

Interested to find out more in any case!

PT for Icehouse!
 

Well, it turns that I am one of there more "interesting" cases as my PN is only motor skills related, and not pain. Normally they are married. I did all kinds of tests and I am basically a 7\10. I passed the strength tests but absolutely failed the balance tests and had the therapist scratching his head. So, once insurance is notified then I will start an eight week PT regime at the facility coupled with exercises that I will need to do at home (or office). The therapist was quite intrigued and seems very optimistic that I could be running and back to "normal" by summer. There is even talk of a special spa like treatment included hot water and electricity....that could be fun!

So, in a nutshell, I am positive about this!

Oh wow!!! Excellent news! OK, so I have both the pain AND the balance and weakness issues. So you are saying therapists can help with the latter but not pain?

I am 99% sure they can help with both, but that is why they find my case unique...the no pain thing.

That is really great Icehouse :).