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Old 12-03-2017, 01:00 PM #31
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The neuropathy has been very bad. I went from depression to just being very angry today. This morning my damn legs gave out from under me. It was a gentle slide down to the ground but the damn legs just would not hold me. That happened months ago and scared the heck out of me. Now I am just ******. I don't understand what is happening. I was doing so good lately.
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Old 12-03-2017, 04:45 PM #32
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SC when’s the last time you had a full health check? It might be worth while?
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Old 12-03-2017, 05:41 PM #33
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PJ, ironically I scheduled some routine blood work just before my decline. I couldn't get an appointment til mid month. Perhaps that will show something but I doubt it. It was just such a huge disappointment having come so far this last month only to slide back these last few days. I am quite certain it is the neuropathy as I have been here before. The weakness is always the worst first thing in the morning and I was having that first smoke of the day. Smokes have got to go!

Last edited by SecondChances; 12-03-2017 at 06:01 PM. Reason: TMI
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Old 12-04-2017, 04:06 AM #34
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SC, I trust that the blood work doesn't show anything of concern.

I have noticed that my PN flares have decreased markedly since I have almost stopped smoking - maybe something to do with carbon monoxide and oxygen transport in the blood?

I hope that will be true for you too.
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Old 12-04-2017, 04:07 AM #35
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PJ is right there. We tend to think every problem from now on is PN, but like other people we might have something else going on too. It doesn't help that PN is fickle, and sometimes changes day to day. And yes, again, smokes have to go indeed.

2000 days sobriety for me today, which also means I didn't drink up €28,000 worth of whisky. I don't know what that is in your money these days, but it's a lot.

Total savings combined with cigarettes are now crouching into entry level Porsche territory. (not that I would want one, just saying. ) Or Tesla if you are more environment conscious.

Here's to the next 2000 ones.
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Old 12-04-2017, 05:15 AM #36
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2000 days is awesome Wide-O .
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Old 12-04-2017, 06:03 AM #37
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Quote:
Originally Posted by Wide-O View Post
2000 days sobriety for me today
Congrats!!

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Originally Posted by Wide-O View Post
€28,000 worth of whisky. I don't know what that is in your money these days, but it's a lot.
~$33,000 USD

Those are sobering numbers right there....
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Old 12-04-2017, 06:45 AM #38
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Quote:
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Those are sobering numbers right there....
You had to, hadn't you!

Double that (well, a bit more now actually) with the money for cigarettes. Ho hum.
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Old 12-04-2017, 09:58 AM #39
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Hi everyone! Just checking in again since it's been awhile. I had to get caught up on reading everyone's progress. I'm so glad we have a place like this to come because a lot of people just wouldn't understand.

My symptoms are still pretty much the same -- still can't feel my feet, haven't driven a car in almost 3 years due to that. I don't want to chance it. I am still faithfully taking the vitamins, and really trying to keep the sugar and salt intake to a minimum.

The only improvement I can tell is, my fingers feel not quite as numb as before, so that's a start anyway. I still have trouble with balance. It's almost impossible for me to go up or down a stairwell without a handrail. Pain and that dastardly "neuro itch" comes and goes, but it doesn't seem as bad as it used to be. Although, I am beginning to think that my body is just used to it now - it's my "new normal". And I am OK with that as long as I can still walk. Hopefully no wheelchair or cane for me, knock on wood...?

Just reading some of your posts about smoking - I am SO grateful I never have smoked in my lifetime, and I really feel for those of you who are trying to quit. That's got to be SO hard to kick. And I really do wonder if that makes a big difference in the severity of one's neuropathy.

So to sum it up for today...I am still far from over this PN thing but I know it could be so much worse. Be well, everyone!
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Old 12-06-2017, 09:25 AM #40
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WGFB, Sure wish you had better improvement to report but still good to hear from you. How long have you been sober? I forget.
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