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Old 08-05-2022, 04:49 PM #671
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Originally Posted by ajwinpain View Post
I am curious, has anyone else who peruses this specific thread had their symptoms flare after covid?

I realize that could be a pretty small sample from those of us who actively read/use this thread, but thought I would see if anyone else may have had a correlation there.
I actually felt almost symptom free when I got the jab and that sent me to bed for 2-3 days, but the PN was gone. I felt like ****, but even that was better than PN. Now most of my symptoms are gone. Today for example I was symptom free. I have had COVID before PN, so I cannot refer to that.
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Old 08-06-2022, 06:47 AM #672
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I actually felt almost symptom free when I got the jab and that sent me to bed for 2-3 days, but the PN was gone. I felt like ****, but even that was better than PN. Now most of my symptoms are gone. Today for example I was symptom free. I have had COVID before PN, so I cannot refer to that.
So here is some irony. My wife actually had nerve pain for a couple months as a reaction to her second vaccine dose.

But I agree that anything I had symptom wise from covid or a vaccine dose isn’t as bad as a bad day/stretch when my SFN flares up.
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Old 08-07-2022, 04:08 AM #673
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Leg weakness at times, I no longer have any tingling or numbness and I still can't run. If I attempt to jog I look like a drunken sailor...

That's about it.
I am happy that you don't have tingling and numbness, especially knowing that they come and go with this nightmare any times they want.

I cannot run either, but because I am operated with a lumbar fusion, so even if I can do that, it is not fun. I can live without jogging, I never liked it anyway. Only used run after leaving public transport. I can ride a horse and bike, walk and hike and I am so happy. I thought I would loose those forever, but I got them back! I got my life back. I am a "man" again after 3 months of trying to redefine my reality looking at women without any attraction. In retrospect it was an interesting experiment, but experiencing it was not fun.

So after 11 years this is what you have left. It seems like you have gone a little further, than I did. Still it is amazing how you could restore your health to an acceptable level. The key is to learn to live with what we have. The healing capacity of our body combined with a strong will is miraculous, so I hope you will still improve.
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Old 08-18-2022, 02:55 PM #674
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It's all been quite depressing. I thought I was making a bit of progress as most of my pain in legs and feet is gone and only the pins and needles but now I realize it is because and feet and lower legs are just numb and nerves are dead. I only have pain remaining in my left hand but my finger tips are completely numb too. My head never cleared and I am still in a fog with bouts of dizziness. I never came close to suicide but I sure thought about it much, not that I wanted to die but I just didn't want to live, especially like a cripple and the self hatred of knowing I did it to myself. Through it all I never craved a drink but rather cursed it. Anyway, I finally reached out for help and although I did not mention the neuropathy or alcoholism as it is all too embarrassing and humiliating so rather I just said that I was very depressed and anxious due to life and all the **** thrown at me that I can't control. I was put on EFFEXOR, felt like total ****, dose dropped down and still felt like death with horrific ringing in my ear so I took myself off. F that. I recently picked myself back up, started "walking" if that is what you can even call it, and started eating better. I just called a podiatrist who does the laser treatments and am set up for a consult for that. I was surprised that it was quite reasonable. If you pay upfront for six sessions they are only $40 a piece. Even on my below poverty income I can try to save up for. It is suppose to help with neuropathy pain, which I no longer have, but also circulation which def might help me. If I progress even the slightest I will be in wheelchair.
I really don't have much hope but perhaps I can at least stabilize? Ugh, and I still have that crazy buzzing in my ears that is making me insane! Oh lord, please tell me this is not permanent. I was reading up on the drug and apparently sometimes it goes away and sometimes not. It is a rare side effect but it happen and the way everything goes in my world I should have guessed I would be that 1 in a 100. 😢
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Old 08-18-2022, 04:01 PM #675
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Questions.....I found a good neurologist that deals with diseases affecting the muscles and the site also talks about vitamin shots and IVs for electrolytes. Since my limbs are basically useless and dead, do you think he can do anything to help me? I am concerned about my ringing ears which from what I understand is a reaction from stimulated neurons in my brain from the anti anxiety and anti depressant effexor. My brain is terribly foggy, I am exhausted and zombie like. My brain is sooooo messed up. I refuse any meds, there is no sense testing my nerve function as I know I have late stage neuropathy, so am I wasting my time? Maybe he can at least somehow keep me from progressing? I already am doing PT and vitamins so kinda doubt there is much more to do for me. Thoughts anyone?
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Old 08-19-2022, 07:50 AM #676
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Questions.....I found a good neurologist that deals with diseases affecting the muscles and the site also talks about vitamin shots and IVs for electrolytes. Since my limbs are basically useless and dead, do you think he can do anything to help me? I am concerned about my ringing ears which from what I understand is a reaction from stimulated neurons in my brain from the anti anxiety and anti depressant effexor. My brain is terribly foggy, I am exhausted and zombie like. My brain is sooooo messed up. I refuse any meds, there is no sense testing my nerve function as I know I have late stage neuropathy, so am I wasting my time? Maybe he can at least somehow keep me from progressing? I already am doing PT and vitamins so kinda doubt there is much more to do for me. Thoughts anyone?
1) Maybe a good D.O. could help with the limbs.
2) Diet. Eat well and I bet the brain fog will dissipate
3) This is just my opinion (based on experience) but prayer can do miracles if done with sincerity.

I am a walking miracle so, yes, I think this is reversible.
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Old 08-19-2022, 11:29 AM #677
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Questions.....I found a good neurologist that deals with diseases affecting the muscles and the site also talks about vitamin shots and IVs for electrolytes. Since my limbs are basically useless and dead, do you think he can do anything to help me? I am concerned about my ringing ears which from what I understand is a reaction from stimulated neurons in my brain from the anti anxiety and anti depressant effexor. My brain is terribly foggy, I am exhausted and zombie like. My brain is sooooo messed up. I refuse any meds, there is no sense testing my nerve function as I know I have late stage neuropathy, so am I wasting my time? Maybe he can at least somehow keep me from progressing? I already am doing PT and vitamins so kinda doubt there is much more to do for me. Thoughts anyone?
As far as I could read everything in my desperate sate, I could lay my eyes on since I have this condition, alcoholic neuropathy stops progressing once you stop drinking. It should also improve with a healthy diet and stress less lifestyle. Easier said than done, espec. in the benning, when you are worried and are desperate and in self hatred. Natural, I have/had those too. It might or might not disappear completely, but def. should improve somewhat. I thought I could never ride a bike again, since I also broke my lumbar fusion being drunk. Yesterday I just rode 75 kilometers on my eMTB and I was completely done, but extremely happy. So I suggest you do some activity which makes you happy and try to raise the intensity as you can and your health improves. Try walking, nature. If you feel anxiety take some pills, but don't exchange one dependency to another. I took Xanax, low dose, half pills, when I thought it was unbearable. Now I rarely ever take it, even during those days, when I have symptoms.

In February I felt numbness after excersize, now it rarely comes. Every person is different, but be patient and kind to yourself. I also thought about suicide since I also lost my manhood, now my hormons came back stronger than ever with pimples on my forehead, which normally I would find disturbing. Now I am glad for them. If I went down the suicide lane, I would have never had sex again. Now at least I have a chance. So keep up and give it time, months, years. If you see some progress write it down, be happy for it. Get prepared for setbacks too! Good luck!
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Old 08-19-2022, 11:44 AM #678
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1) Maybe a good D.O. could help with the limbs.
2) Diet. Eat well and I bet the brain fog will dissipate
3) This is just my opinion (based on experience) but prayer can do miracles if done with sincerity.

I am a walking miracle so, yes, I think this is reversible.
Thanks for the hope Icehouse. I am working very hard and trying to keep the faith. As to praying I have not done as I feel selfish praying for my self induced affliction, though I DO pray for forgiveness and strength with sincerity.
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Old 08-19-2022, 12:09 PM #679
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Thanks Jean for your encouragement and congrats to you! My expectations are very low at this point which is good as it will keep me from being disappointed, but still hopeful for stabilization and even some measure of improvement though certainly not expecting anything near a miracle. One thing I am VERY grateful is that I have absolutely no desire/compulsion to drink. I have tried hundreds of times to quit and could only go a few days while white knuckling the whole time before I went out for relief from the torture but this time it was so very different, like a switch turned off. (I did quit for 13 years but only after rehab and then time in a half way house). I never I thought I could quit again nevermind on my own but I believe I have. My issue this time has been I had no accountability as I am completely alone now and no one knows how I struggle. Before I had a husband and young children. God and you all will need be my accountability. Also I know that despite all, my children love and need me still. (Just like a typical alcoholic I am very sly and do an amazing job of hiding my disease from all). The only positive that I can feel just not is my self confidence is slowly coming back and while I have many regrets, I tell myself that sometimes it takes what takes. I am grateful for my blooming sobriety, I am alive and doing the best I can.
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Old 08-19-2022, 04:42 PM #680
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Thanks Jean for your encouragement and congrats to you! My expectations are very low at this point which is good as it will keep me from being disappointed, but still hopeful for stabilization and even some measure of improvement though certainly not expecting anything near a miracle.
Good. It will happen, just don't start drinking again! As soon as you will see some progress you will have a much better mood. Good luck and keep reporting.
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