Alcohol Induced Neuropathy Part 2

icandothis · 11-16-2022, 07:48 PM

Quote:

Originally Posted by Wide-O

My improvements ended after about 4 years too, but my "mental game" in dealing with it still keeps improving if that makes sense.

When you say four years that makes sense because nerves heal so slowly. And if I remember from previous posts you are tall so they’ve got further to go. 😃

Did your improvement continue through about four years with regards to improving on pain/numbness/tingling in the feet? Or was it mostly improvement in motor/muscle issues?

Thanks!!!

Wide-O · 11-17-2022, 06:15 AM

Quote:

Originally Posted by icandothis

When you say four years that makes sense because nerves heal so slowly. And if I remember from previous posts you are tall so they’ve got further to go. 😃

Did your improvement continue through about four years with regards to improving on pain/numbness/tingling in the feet? Or was it mostly improvement in motor/muscle issues?

Thanks!!!

Indeed, 6'7"

That's the thing with PN, I don't have any motor/muscle issues. I can dance or walk and you'll never notice it. It's pure pain and some numbness in my toes. The improvement was in the pain department mostly.

And of course, there were setbacks in that early period too, as this is PN, so it's not a straight line, but the first 2 years were a massive improvement - which to this day I attribute mostly to a sustained sensible diet.

Wide-O · 11-24-2022, 05:32 AM

A very interesting video about gratitude, and the effects of that (and stress) to our health.

Prof. Seheult of MedCram was an incredible source of scientific and objective information during Covid, and here he looks at the effects of stress and anger on our health, using scientific studies and methods.

Rather surprising (or maybe not, given what we always talk about here), but all this can be measured.

The Science of Thankfulness and Forgiveness Clearly Explained - YouTube

Well worth the 26 minutes.

icandothis · 11-30-2022, 03:34 PM

Wide-O,

The pain you mention massively improving in the first two years, was that the pain you had mentioned previously being around/behind the big toes?

Thanks and hope everyone is doing well.

Wide-O · 12-01-2022, 07:41 AM

Quote:

Originally Posted by icandothis

Wide-O,

The pain you mention massively improving in the first two years, was that the pain you had mentioned previously being around/behind the big toes?

Indeed it was. During the worst moments it felt like a) my feet were literally on fire b) someone was stabbing a stanley knife in my soles under my toes and c) someone trying to pull out my big toes with a wrench. I'm not joking. Sometimes my right toe cramped up and stood in a really weird position, as if it was broken and pushed aside.

2 years later all that really heavy stuff was gone. And last summer I accidentally did 20.000 steps in a day, and just felt tired the next day, nothing else.

icandothis · 12-01-2022, 05:30 PM

Quote:

Originally Posted by Wide-O

Indeed it was. During the worst moments it felt like a) my feet were literally on fire b) someone was stabbing a stanley knife in my soles under my toes and c) someone trying to pull out my big toes with a wrench. I'm not joking. Sometimes my right toe cramped up and stood in a really weird position, as if it was broken and pushed aside.

2 years later all that really heavy stuff was gone. And last summer I accidentally did 20.000 steps in a day, and just felt tired the next day, nothing else.

If you don't mind me asking. What is it like now? My discomfort is mostly like part of my foot feels swollen, or like I am walking on a bunched up sock, or a painful tingle (not as bad as you described but burning sensation is a fair description). It is almost all around the ball of the foot and where the toes meet the foot. At times (although less frequent) it feels like a bad bruise. Does any of this sound familiar?

Are you on any meds? I am evaluating gabapentin. Thanks again!!!!

Icehouse · 12-02-2022, 10:30 AM

4139 days sober

Surgery next week and then off to Canada for a week! We'll see how the cold does on my legs

jean2399 · 12-02-2022, 02:36 PM

Quote:

Originally Posted by Wide-O

Indeed it was. During the worst moments it felt like a) my feet were literally on fire b) someone was stabbing a stanley knife in my soles under my toes and c) someone trying to pull out my big toes with a wrench. I'm not joking. Sometimes my right toe cramped up and stood in a really weird position, as if it was broken and pushed aside.

2 years later all that really heavy stuff was gone. And last summer I accidentally did 20.000 steps in a day, and just felt tired the next day, nothing else.

I cannot even imagine what you have been trough. Mine was a breeze in comparison and I just did not want to live on certain days. I am happy you have improved.

Wide-O · 12-06-2022, 09:50 AM

Quote:

Does any of this sound familiar?

Yes, it sounds like 90% the same.

Quote:

Are you on any meds? I am evaluating gabapentin. Thanks again!!!!

I do take Zaldiar for pain control, works pretty well. Take your time in finding out what works for you personally and what doesn't.

Quote:

I cannot even imagine what you have been trough. Mine was a breeze in comparison and I just did not want to live on certain days. I am happy you have improved.

Thanks a lot, appreciated.

The silver lining is that getting sober and staying that way for 10+ years feels like some kind of super power, like "oh OK, I actually CAN do hard stuff when really needed".

icandothis · 12-06-2022, 11:25 AM

Quote:

Originally Posted by Wide-O

I do take Zaldiar for pain control, works pretty well. Take your time in finding out what works for you personally and what doesn't.".

First off thank you again for sharing. That really goes out to everyone here. It is helpful to feel like you aren't alone.

With regards to the Zaldiar, is that as needed for say flare ups or do you take it everyday? I am hoping to find something that works but that I don't need to be on constantly. A lot of hoping these days...

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