ALS News & Research For postings of news or research links and articles related to ALS

Thread Tools Display Modes
Old 06-19-2007, 07:14 AM #1
BobbyB's Avatar
BobbyB BobbyB is offline
In Remembrance
Join Date: Aug 2006
Location: North Carolina
Posts: 4,609
10 yr Member
BobbyB BobbyB is offline
In Remembrance
BobbyB's Avatar
Join Date: Aug 2006
Location: North Carolina
Posts: 4,609
10 yr Member
Default ALS patient's family hopes for cure

ALS patient's family hopes for cure

June 19, 2007
By Carrie Napoleon Post-Tribune correspondent

Carol Corey knows all too well the ravages of ALS, also known as Lou Gehrig's disease.
The Knox resident helped her husband care for her father-in-law as the disease gradually destroyed his body and claimed his life.

Today, she is watching out for her son, Eric, 21, who has been battling the disease since he was just 15. She said doctors have told her he is the youngest person on record diagnosed with ALS, amyotrophic lateral sclerosis.

Although little is known about the disease that affects relatively few people -- only about 5,000 new cases are diagnosed each year, according to the ALS Association Web site -- even less is known about how it will affect someone so young.

"It has been so hard; we have been hit with a disease they don't know anything about," Corey said.

There is no cure for ALS. It is a neurodegenerative disease that usually attacks both upper and lower motor neurons and causes degeneration throughout the brain and spinal cord, according to the Web site.

Recent research looks promising, but little is out there now to ease the symptoms or delay the progress of the disease.

A common first symptom of ALS is a painless weakness in a hand, foot, arm or leg, which occurs in more than half of all cases. Other early symptoms include difficulty with speech, swallowing or walking.

For Eric, who did not want to be interviewed for this article, the disease started with numbness in his fingertips and toes. Corey said he has a slowly moving form of the disease, and it is unclear how his young age and strength may play a role in slowing its progression.

So little is known, just getting him properly diagnosed was difficult because none of his doctors expected to see ALS in someone so young.

Typically, the disease affects people between 40 and 70

years old, according to the

ALS Web site.

More advances in research and treatment for the disease have occurred in the past 10 years than since the disease was first diagnosed in 1869.

Stem cells and gene therapy appear the most promising treatments, but the research has a way to go before it can be viable for her son, Corey said. She remains hopeful that, through more research, a cure is not far off.

To that end, the family has frozen the stem cells of Corey's grandchild. Since the child was a family member, there is at least a 70 percent chance they will match Eric when needed.

"I think there's an answer out there," Corey said. "The diseases stem cells help or cure is just phenomenal."


ALS/MND Registry

BobbyB is offline   Reply With QuoteReply With Quote

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

All times are GMT -5. The time now is 06:13 PM.

Powered by vBulletin • Copyright ©2000 - 2020, Jelsoft Enterprises Ltd.
Search Engine Optimisation provided by DragonByte SEO v2.0.31 (Lite) - vBulletin Mods & Addons Copyright © 2020 DragonByte Technologies Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2020 DragonByte Technologies Ltd.

NeuroTalk Forums

Helping support those with neurological and related conditions.


The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.