THE FIGHT AGAINST ALS


http://jenerationstudios.com/mtx7.0/home.html


Why is it that 140 years after the first discovery of Amyotrophic Lateral Sclerosis
(ALS) is there still nothing dependable that medical science possesses to treat it? Is it
the mysterious nature of this terrible, progressive neurodegenerative disease - more
commonly known as "Lou Gehrig's Disease" - that is such a challenge for researchers?
Is progress not being made because the number afflicted with ALS is considerably
fewer than "bigger" diseases like cancer and AIDS, therefore making it less glamorous
and profitable? The Documentary Better Days, from Director Nadine El-Khoury and her
acclaimed creative team at Jeneration Studios, will address these questions and more.

"Help me conquer this ugly disease." -- Greg Bonfa, ALS sufferer

http://jenerationstudios.com/mtx7.0/home.html


Jeneration Studios team is making a documentary "Better Days", about ALS - it's still in the production stage. My friend Nadine El Khoury is the filmmaker and has chosen me as the main subject for this documentary. She will explore different aspects of this disease - including various treatment modalities. We all know that Rilutek isn't doing much for us, so she will explore many other options. This documentary will also show the world how devastating this disease is by visually comparing how a healthy person does thoughtless everyday tasks, as oppossed to an ALS victim, and many more important ALS issues.

I (like all ALS victims) have been cheated out of my whole life since my diagnoses four years ago at the age of 32. It's ridiculous that after 140 years we have absolutely nothing that can help us! Personally I would love to see the medical school curriculum updated so that more Doctors take into consideration the big picture such as nutrition, supplements, etc... especially when there are studies showing they help, and not be afraid to mention it to their patients, instead of merely prescribing FDA approved drugs that don't work yet in our case.

If anyone has an interesting story they absolutely have to tell, which can help change people's lives let us know, and we will consider including you in the documentary. Use the email at the end.

please take a look at the website and forward it to people who you think would like to know about what we're doing.

Keep checking for updates on the ALS documentary page as we will add video clips and pictures until we finish the documentary.

http://jenerationstudios.com/mtx7.0/home.html

nadezee4shezee@hotmail.com

Greg
http://www.als.net/forum/topic.asp?TOPIC_ID=1817