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| ALS News & Research For postings of news or research links and articles related to ALS |
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08-07-2023, 03:06 PM
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Grand Magnate
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This chart / table shows something interesting regarding pacer . . . :
[url=*** - Google Drive[/url] Note except for the first period, fewer surgical patients died in the studies than non-surgical patients . . . were the studies 'frontloaded' with hospice patients? ". . . Hospice is provided for a person with a terminal illness whose doctor believes he or she has six months or less to live . . . " What Are Palliative Care and Hospice Care? | National Institute on Aging more detail soon. 
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08-08-2023, 10:11 AM
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Grand Magnate
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Quote:
(I do not know why the link didn't show correctly?) . . . try again. |
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08-08-2023, 11:41 AM
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Grand Magnate
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Web page showing Hospice means no clinical trials:
Advantages and Disadvantages of Hospice Care (disadvantages section) |
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08-09-2023, 12:37 PM
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Grand Magnate
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The specific clause:
"Participation in experimental treatments or clinical trials is not allowed because they are considered life-prolonging. In addition, other treatments or procedures considered life-prolonging nasogastric or "feeding" tube, might not be covered.5 Center for Hospice Care. Feeding, hydration, and hospice care." |
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| "Thanks for this!" says: | wgate (08-10-2023) |
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08-12-2023, 09:14 AM
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New Member
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Beef, there is no table or chart in the linked article. Is there a link WITHIN the article that would bring me to the table/chart?
-rb |
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08-14-2023, 11:40 AM
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Grand Magnate
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The table's link is in the 10:11am post, rather than the article. It seems to be operational.
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08-14-2023, 01:19 PM
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Grand Magnate
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Good introductory research papers regarding Amyotrophic Lateral Sclerosis . . . relatively easy to read, many patients would likely understand and learn a lot from them.
Noah Lechtzin, August 2006 Respiratory Effects of Amyotrophic Lateral Sclerosis: Problems and Solutions | Respiratory Care (rcjournal.com) Adriano Chiò, et alia, Oct-Dec 2009 Prognostic factors in ALS: A critical review - PubMed |
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re: pacing treatment . . .
Web page showing Hospice means no clinical trials
ALS 101 note
Hybrid Mode
