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04-24-2024, 02:05 PM | #1 | |||
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Grand Magnate
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Special facility in Mass. giving ALS patients their independence back
Special facility in Mass. giving ALS patients their independence back - YouTube At the moment 3:15 seconds in is an image of one of the pacer users and is currenly one of the top twenty longest survivors of pacer interested patients. The video aired via WCVB Channel 5 Boston on 20 February 2024. |
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05-01-2024, 03:43 PM | #2 | |||
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Grand Magnate
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Initial SCALED unofficial report regarding online pacer study: count of the patients
There are 246 cases where whether the patient deployed the pacer is unreported, 185 cases where the pacer was reported deployed. Since the number of patients who deployed the pacer is substantially less than the number of patients who did not, a scaled column is added, increasing the difference found by 133% (thereby making the cohorts comparable: 185 * 133% ~ 246). The current status shows pacer users leading the others at the median, three, five and eight years . . . at the ten year threshold they are about the same. At the Texas (eleven and one half years) threshold nonusers appear to have a slight lead and at twenty years a strong lead, however, most pacer users have not had enough time to reach twenty years, further, at least four patients of these long term survivors would not have been eligible for the pacer because they have long been long term survivors rather than fresh cases. Hence, the pacer is currently emerging as leader in all temporal categories (subtract four patients from each scaled difference). Unofficial Pacer Study Summary: Scaled - Google Drive Unofficial Pacer Study Summary: Scaled - Google Drive |
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