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09-27-2007, 06:24 PM | #1 | |||
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In Remembrance
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Dear all,
From time to time researchers ask us if they can contact our patients for research. Many of you may have heard of Dr Robert "Bob" Brown from MGH, well know for his research efforts into ALS. Please have a look through the information below and if you are interested please contact Nicole or Diane at the contact details below. Please address all queries or comments to Dr Brown's team. Many thanks Paul Wicks, PhD Research Scientist PatientsLikeMe.com Researchers at Massachusetts General Hospital are continuing to seek individuals for participation in an ALS Gene Study conducted by Dr. Robert H. Brown Jr. The purpose of this research study is to identify genes and environmental factors that may cause or increase the risk of developing amyotrophic lateral sclerosis (ALS). This study includes individuals with ALS, possibly some family members, and unaffected, unrelated controls. Participation requires a one-time blood sample, completion of questionnaires about environmental and family history, and permission to review medical records pertaining to the onset and progression of the disease for those with the disease. All costs are covered and travel to Boston is not necessary. Arrangements can be made to have participants' blood drawn locally. Eligibility: Any person who is diagnosed with ALS and possibly some family members. We are also recruiting unrelated, unaffected individuals as population controls, such as spouses and friends. We would love the opportunity to work with you. Please contact us at: Nicole Couture or Diane McKenna-Yasek Massachusetts General Hospital Cecil B. Day Laboratory 114 Sixteenth Street, Rm 3125 Charlestown, MA 02129 Tel: 617-726-5750 Fax: 617-726-8543 Email: ncouture@partners.org Email: dmckennayasek@partners.org http://www.patientslikeme.com/messages/view/84492
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. ALS/MND Registry . |
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